Stress in Context of Pediatric Deaths

 
 
 
 
This research examines family and health-care-staff stress in the context of death in health-care pediatric units. The plan of the research will be to provide an overview of the subject and then to present a review of relevant literature, with a view toward identifying major and subsidiary issue fronts relative to this topic.

That a child should predecease his parents is the most wretched of cosmic ironies. The subject has informed a body of popular literature, of which John Gunther's Death Be Not Proud, written in 1949 and taking its title from a sonnet by John Donne, is exemplary:

The impending death of one's child raises many questions on one's mind and heart and soul. It raises all the infinite questions, each answer ending in another question. What is the meaning of life? What are the relations between things: life and death? the individual and the family? the family and society? . . . science and politics and religion? man, men, and God? All these questions came up in one way or another, and Johnny and I talked about them. . . . He wasn't just dying, of course. He was living and dying and being reborn all at the same time each day (Gunther, 1939, p. 155).

By no means are emotional meditations confined to literary narratives. An editor's note to a statistical review of death certifications in Pima County, Ariz., says the following:

There's something very sad about the results of this study, and I refer to more than the deaths of children. Modern medicine has forced t


     
 
 
 
    

 

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d situational" features that explain responses to cancer (Van Donigen-Melman & Sanders-Woudstra, 1986, p. 167). Sensitivity to parental concerns and stresses in pediatric oncology cases can be problematic where technology or administrative barriers between patient and doctor exist. In that regard, Gunderman (2000) cautions radiologists, who specialize in reading x-rays and fluoroscopes, against hypertechnical manner or obliviousness of the psychoemotional stress of families with a child who has cancer. Some pediatric diseases foster idiosyncratic responses because of their psychosocial content. Lesar and Maldonado (1997) identify aspects of family life that are affected by pediatric terminal AIDS and to measure statistically the experience of being psychologically, economically, and socially on adults and children in households where children are infected with AIDS. The focus of another study (Rotheram-Borus & Others, 1998) measures factors of conflict and stress between adolescents and parents in households where one or more family members (not solely children) have AIDS, and whether and to what extent the presence of AIDS in a given family functions as a key factor determining the nature of the relationship. Both studies appea

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